China confirms birth of gene-edited babies, blames scientist He Jiankui for breaking rules.

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He had announced their birth in November, after which the authorities announced an investigation into the matter.

A team of investigators told the official Xinhua news agency on Monday that a preliminary investigation had concluded that He had “organised a project team that included foreign staff, which intentionally avoided surveillance and used technology of uncertain safety and effectiveness to perform human embryo gene-editing activity with the purpose of reproduction, which is officially banned in the country”.

What is gene editing? Who’s doing it? And is it right?

Between March 2017 and November 2018, He forged ethical review papers and recruited eight couples to participate in his experiment, resulting in two pregnancies.

One of the mothers gave birth to twins nicknamed “Lulu” and “Nana”, the investigators said. Another woman is still carrying a gene-edited fetus.

They also said that He, his staff and organisations related to his project would be punished according to laws and regulations.

The Guangdong government will keep the twins under medical observation.

The government decision was welcomed by the scientific community.

A biologist, who asked not to be identified, said: “This is a result I’m happy to see,” he said. ”This should be the way. There needs to be protection of the babies too.”

He said he had also researched gene-editing but all experiments were done on lab rats only.

Four other China gene-editing cases, from micropigs to superdogs

In an interview with Beijing Youth Daily on Sunday, Shao Feng, from the Chinese Academy of Sciences and deputy director of the National Institute of Biological Sciences, said the whole incident would need to be investigated thoroughly.

“If I were to handle the matter, I would never tell [the twins] they’ve been gene-edited and allow them to live their lives like normal people,” he said. “I think that’s for the best.”

An expert in the field, Shao is worried about potential health risks the children will face as well as the incident’s effect on the human race.

“Once the gate of gene-editing is wide open, the human race will be finished,” he said. “The technology is strong but the terrifying fact is that anyone slightly trained in a lab can perform it.”

He has not been seen in public since he announced the births at the Second International Summit on Human Genome Editing in Hong Kong in November. Some media reports have claimed he is being kept under house arrest or even detained by police.

What do we know about He Jiankui’s genetically modified babies?

A spokeswoman at the Shenzhen-based Southern University of Science and Technology, He’s employer, has previously dismissed talk of detention as rumours.

He has faced a wave of condemnation from China’s scientific community and health officials have insisted they knew nothing of his experiments.

China’s Ministry of Science and Technology has ordered research institutes to suspend all of He’s scientific projects.

An investigation into He’s work found that the ethics review committee at the Harmonicare Women and Children’s Hospital, which the scientist said had approved his research, was not registered with the city’s health authorities.

The hospital had earlier denied any involvement with the project.

Last month the Shenzhen authorities announced they would issue draft guidelines for the ethical review of biomedical research involving humans.

Internet users flooded social media with comments on the news of investigations into He’s work. “This professor is not worthy of being in education, he has the evil ambitions of a terrorist in disaster movies,” one wrote on Weib.

“I knew he’d end up in ruins, and this will affect the Chinese scientific community,” another wrote.

It is unclear what punishments He faces or what the consequences would be for the babies and the pregnant volunteers, if any.
 
This shit will lead to more unnecessary unethical changes and bring new genetic diseases.

I think it will help eliminate a lot of Genetic diseases since they can now edit out and repair the faulty DNA even before conception. After it becomes a norm in medicine people will then move on to designer babies, whereby rich people can dictate to geneticists how they want their future child look/be. Crazy times ahead of us.
 

TooMacaan

VIP
Tbh, we probably owe many thanks to the previous generations of unethical experimentations for a lot of the progress & tech we have today, esp. in the Psych/Bio/Medical field. A lot of people suffered and were even deprived of the most basic of rights... but as a result, a lot of people are currently alive today; many lives saved, which otherwise wouldn't have been. It still doesn't justify what 'scientists' like these do though, imo, bc: there isn't the slightest guarantee that they'd be successful, they're breaking the law, the cons heavily outweigh the pros, and last but not least-- some things just shouldn't be messed around with!!

Playing with human life (defenseless' babies at that) as if it were easily disposable smh:confused:. Let's leave the lid on Pandora's jar blease.
 
Human genome editing is the future. Lawmakers, scientists, and bioethicist should make new guidelines for responsible applications of human genome editing. The potential it has benefit of the greater good of mankind is great, but also it’s wise and prudent to proceed with caution. It can seriously harm subjects themselves, but also their progeny. In the wrong hands it could be used for biological warfare
 
I think it will help eliminate a lot of Genetic diseases since they can now edit out and repair the faulty DNA even before conception. After it becomes a norm in medicine people will then move on to designer babies, whereby rich people can dictate to geneticists how they want their future child look/be. Crazy times ahead of us.
Yes but we do not know the long-term implication of that editing on his/her health. What if he/she forms a new genetic disease which could pass down to his/her infants since Edited genes can be passed down to the next generation?

It's not going to be the future because it's considered unethical worldwide and haram in Islam to use genetic engineering technology on humans.

@TooMacaan @ABG
 

Crow

Make Hobyo Great Again
VIP
It's not going to be the future because it's considered unethical worldwide and haram in Islam to use genetic engineering technology on humans.

@TooMacaan @ABG
Says who? If gene editing can be used to remove birth defects and mental illnesses in an infant, then it has practical value and wouldn't be haraam in my opinion. Cosmetic changes just for the sake of changing might be though.
 

Keeysan

The humble one
Let’s be honest, the world probably wants to see this in real life but sometimes you’ve got to cap on human’s motives
 

Apollo

VIP
The field of genetics is still in its infancy. Calm down guys, they are nowhere near designer babies. They don't even know the genes involved with boosting IQ.
 

Keeysan

The humble one
The field of genetics is still in its infancy. Calm down guys, they are nowhere near designer babies. They don't even know the genes involved with boosting IQ.
Targeting iq kulaha? Atleast the brain is a complex (and rather mysterious organ in itself) to their dismay
 
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